Emily loves music, loves to sing, dance and walk on her tip toes. Emily loves to play in the water, it's as though she feels it differently than you and I do. She is always smiling, always cute and funny in her own special way. She struggles to communicate a lot of the time, but has found was to make her needs known. She has wiggled her way into our hearts forever and we love her....she is perfect. God doesn't make mistakes and it would be everyone elses mistake not to get to know and love our precious baby girl. This is my child...part of my flesh...the love that my husband and I share. I wouldn't trade her for the world.
"Twas the Night Before Christmas
And all through the house
The creatures were stirring
Yes, even the mouse
We tried melatonin
And gave a hot bath
Asleep early for Christmas?
...an unlikely path
The children were finally
All nestled in bed
When visions of Christmas
Ran through my OWN head
Did I get the right gift?
The right color and style?
Would there be a blank stare
Or even, maybe, a smile?
Friends & family come
But they don't understand
The pleasure she gets
Just from bending her hands.
"Just make her stop it," some say
"Just tell her "no",
“You must learn to be tough.."
On and on they go...
We smile and nod
Because we know deep inside
The debate is moot
Let them all take a side
We know what it's like
To live with the spectrum
The struggles, triumphs
achievements and regressions.
But what some don't know
And what some don't see
Is the joy that we feel
Over simplicity.
She said "hello"!
She ate something green!
She looked me in my eyes
She did not cause a scene!
She peed on the potty!
Who cares if she's ten;
She stopped saying the same thing
Again and again!"
Some others don't realize
Just how we can cope
How we bravely hang on
At the end of our rope
But what they don't see
Is the joy we can't hide
When our children with autism
Make the tiniest stride
We may look at others
Without the problems we face
With envy, with wonder,
Or even distaste,
What we want them to know
What's important to see
Is that children with autism
Bring simplicity.
We don't get excited
Over expensive things
We jump for joy
With the progress work brings
Children with autism
Try so hard every day
That they make us proud
More than words can say.
They work even harder
Than you or I
To achieve something small
To reach a star in the sky
So to those who don't get it
Or can't get a clue
Take a walk in our shoes
And I'll assure you…
That even 10 minutes
Into the walk
You'll look at us all
With respect, even shock.
You will realize
What it is we go through
And the next time you see us
I can assure you
That you won't say a thing
You'll be quiet and learn,
Like the years I learned to
When the tables were turned.
~Christine Muczyk
In The future, we will update this area with photos of Emily and/or the things she loves.
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